This is not the love of romance stories or Hollywood endings. This is the kind of love that brings you to the end of yourself and then beyond. The kind of love that takes all you’ve got during the day and keeps you up at night. Real. Costly. Love.
…we meet countless parents and family members who are battle-worn from advocating for equality and support for their children with disabilities. These parents can be fierce, because they need to be! They are forced to advocate/argue/fight against systems and societal forces that actively discriminate against their children. Too often, they face these same barriers and oppressive attitudes in churches, synagogues, and faith communities that claim to care for all God's children.
I am limited in my humanity to understand why it took me 37 years to find my husband, and why it took me 9 years to learn teaching was not for me, but I also know that in those times of waiting the Lord was doing important work.
Dear Church, As restrictions are being lifted and you plan for being together in person once again, please think of us...
As my husband, Jonathan, and I have talked with other parents of kids with disabilities or special needs, we’ve learned that I was definitely not alone with my questions and struggles. Questions and struggles not only in relation to God, but also in relation to how to navigate this life as a parent with a child who has additional needs. But, who do we go to with our questions? Who do we go to for support on days when life is overwhelming and often others just don’t “get it”? Hope Anew is launching an online community for parents of kids with disabilities or special needs. A laugh together, cry together, pray together community.
For many families who experience disabilities, getting away for rest and relaxation might seem like an inconceivable goal - especially if parents are hoping to take a break without the kids. At the Inclusion Fusion Live! conference in Cleveland this spring, Jonathan McGuire from Hope Anew shared 5 simple ways to take "Five-minute vacations" to help refresh your care.
I believe that my kids are understood by their Creator, one who intercedes for all of us when words fail or aren’t possible. I believe that as complicated as they may seem, both Rachel and Janneke have purpose, a purpose that may simply be to motivate the rest of us to care and be more caring.
Wallin offers biblical encouragement to parents and caregivers in similar positions by sharing wisdom and insights found on her own journey toward forgiveness and healing.
I thought I had outgrown that keen sense of yearning, but then I became a mother of a child on the autism spectrum. I found a whole different level of yearning for all of the answers to be revealed as I contemplated an unknown future.
What was done as a means of meeting one of our needs has transformed how the teenagers and adults in our church perceive those with disabilities. By looking for ways to make a place for Camille and offer community to our family, our church is discovering that Camille offers gifts back to the body.