One day in November, I experienced Chris’ anticipation in full. We had arrived at a local mall. Walking in the door, at the end of a very long hallway we could see Santa’s giant decorative red chair set up in the centre of the atrium. Chris exclaimed “ho-ho!” and took off running toward Santa’s throne.

When I was diagnosed with Myasthenia Gravis several years ago the biggest loss I experienced was my sense of self worth. I felt so broken that I couldn’t believe I was still loveable.

Last night I did what I do every night as the day winds down, I mentally went through my day and noted all the things I didn’t get done.  The list was long. The tasks should have been easy.  I felt like I had failed at life, and this was a familiar feeling because this is a familiar routine. 

Crossing the threshold of being disabled myself has been such a privilege and a joy because it has transformed the way I can connect with people. Even if our diagnoses are wildly different, and our bodily experiences seem to have little in common, there’s still a deep understanding of what it is to live in a way that doesn’t always fit the systems of our world.

Go out quickly into the streets and alleys of the town and bring in the poor, the crippled, the blind and the lame.’

‘Sir,’ the servant said, ‘what you ordered has been done, but there is still room.’

Luke 5: 22

Much of the rhetoric in our society about pain suggests that it can, and should, be used as a catalyst to become stronger.

But why is strength the goal? Is weakness always a problem?