We allow Michael to have baths at certain times, and then we wrestle him out of the bathroom at other times – compliance is an issue which he can’t understand! Sometimes we give in because, well, it's just easier.
When he’s in the water he's happy and we're happy.
Our son caught on to touch screens immediately and can now stay engaged at school on the iPad for up to 40 minutes. The majority of his instruction comes in the form of these technologies because the information is visual, interactive, tactile and rewarding.
Our church has done many things right in creating a safe and accommodating place for children, including a Plan to Protect® policy, offering to provide workers and they have even offered seminars on children with disabilities. Outside of the children’s programming, though, I know of nothing specifically in place for adults with disabilities except general acceptance.
On the Joni and Friends Web Site I listened to an MP3 by Will and Arlyn Kantz and they really understand our needs. Our family can relate to almost every behavioral situation they spoke about, the challenges families face and even the fears of future challenges like puberty, programming, the workers, the sensory issues, congregational reactions, etc.
I think for anything to be successful in fostering ‘belonging’ in a church setting, someone who has a child with a disability needs to be involved. They have ‘been there’ and really understand the needs of the family with a child with a disability. I haven't heard of any other support group quite like this one.
How will you respond? Will you sit down with them and go over the ontological argument for God’s existence or the intricacies of the Trinity? Will you even try to explain issues related to the logical problem of evil? If not, do you have anything for them? ...But instead of just requiring a rational response, it requires a compassionate response.
