An empty MRI machine sits in a vacant room. It is large, the lights are dim, and the scene feels eerie.

The technicians had very kindly broken the rules and allowed me to stay with him in the room, but I was still outside of the tube. I had the freedom of my limbs. The noises the machine made were not inches from my ears. I called encouraging words to him inside the tube, but they were just more sounds. So I did the only thing I could think to do. … Read More →

…we meet countless parents and family members who are battle-worn from advocating for equality and support for their children with disabilities. These parents can be fierce, because they need to be! They are forced to advocate/argue/fight against systems and societal forces that actively discriminate against their children. Too often, they face these same barriers and oppressive attitudes in churches, synagogues, and faith communities that claim to care for all God’s children. Read More →

Jasmine, a white woman, stands in a recording studio. She is wearing headphones and is singing into a microphone.

I laid in my stretcher outside the operating room listening to the metallic clink of the doctors preparing their tools and I gave my fears, hopes, and doubts over to God.  I had connected with family and friends.  Made sure people knew I loved them.  The odds were good I would see everyone again but my health had been declining steadily for two years and I didn’t trust my body anymore. Read More →

Wentworth Miller says when you’re in survival mode, there isn’t space for “we” or “community.” It becomes all about “I” and “me.” He is not relating specifically to the challenges of disability, or faith communities fostering , but he shares valuable information about the challenges that may arise if you feel singular, different, and alone; if you have to spend the majority of your days in survival mode over the long term. Read More →

A glass of apple juice sits on the counter with several oatmeal cookies stacked on top. A jug of apple juice sits in the background.

So much of what we do on a daily basis we do without qualifications. We walk through every conceivable season of a person’s life with them because we are the ones who happen to be present when the call comes. Read More →

Two young adults sit on couches and look off in the distance. The photo is in black and white. Abby is in the foreground. She has long curly hair. Logan is in the background. He has short hair and looks very relaxed.

While the incarnation is a unique event in Christian theology, the experience of embodiment is not. I have found the image of the Word made flesh to be a powerful paradigm for seeing the experience of my minimally verbal children, both in their relationships with me and their expression of faith. Read More →

A man with grey hair, and a woman with black hair are talking while looking at pottery in a glass showcase. There is a mug with a brown sheep painted on it, and another mug with stripes.

  He was middle aged, had Down Syndrome, and spoke no English, but he said hello and quickly answered my introductory question about how long he had worked in that shop.  I apologized for not understanding his answer and he realized that I was at a disadvantage in this conversation.  Read More →