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Belonging, Like Jazz

Like Jazz musicians, church leaders need to become masterful at holding tension and refrain from resolving it prematurely. Rather than encouraging others to strictly preach victory in Jesus, perhaps we need to make space for people to find their own voices and speak their hurts or cry out to God. 

By |2023-05-10T20:38:47-04:00December 21st, 2022|Books, Reflections, Uncategorized|0 Comments

Unshaken Kingdom: Disruption, Transformation, and the Accessible Church

The therapeutic response to chronic illness or disability is usually rest and pacing. However we live in a society where that is increasingly discouraged, if not impossible. Most people’s temptation is to change their circumstances or to find solutions quickly, rather than trust that God will provide what is needed. Instead, Mary conveys a sense of peace from the beginning.  It is this sense of peace which comes from God, and trusting in God, that I think empowered Mary and can also empower us to respond to whatever we face thoughtfully and prayerfully.

Outside the Machine

The technicians had very kindly broken the rules and allowed me to stay with him in the room, but I was still outside of the tube. I had the freedom of my limbs. The noises the machine made were not inches from my ears. I called encouraging words to him inside the tube, but they were just more sounds. So I did the only thing I could think to do. ...

A Just Appeal: The mother who confronts Jesus

…we meet countless parents and family members who are battle-worn from advocating for equality and support for their children with disabilities. These parents can be fierce, because they need to be! They are forced to advocate/argue/fight against systems and societal forces that actively discriminate against their children. Too often, they face these same barriers and oppressive attitudes in churches, synagogues, and faith communities that claim to care for all God's children.

By |2022-07-08T12:15:42-04:00July 8th, 2022|Parenting, Personhood, Theology, Uncategorized|0 Comments

When my body won’t hold me anymore – music and mortality

I laid in my stretcher outside the operating room listening to the metallic clink of the doctors preparing their tools and I gave my fears, hopes, and doubts over to God.  I had connected with family and friends.  Made sure people knew I loved them.  The odds were good I would see everyone again but my health had been declining steadily for two years and I didn’t trust my body anymore.

By |2022-06-29T15:35:41-04:00June 29th, 2022|Stories, Uncategorized|1 Comment

The Gap Between Disability and Community

Wentworth Miller says when you’re in survival mode, there isn’t space for “we” or “community.” It becomes all about “I” and “me.” He is not relating specifically to the challenges of disability, or faith communities fostering , but he shares valuable information about the challenges that may arise if you feel singular, different, and alone; if you have to spend the majority of your days in survival mode over the long term.

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