It might sound cliché, but I was hired to help others and they helped me just as much, perhaps even more. I learned about acceptance, trust, diversity, and what it meant to have a place to belong. Looking back, I realize God was beginning to teach me about 1 Corinthians 12 and what it means to be whole.
Go out quickly into the streets and alleys of the town and bring in the poor, the crippled, the blind and the lame.’ ‘Sir,’ the servant said, ‘what you ordered has been done, but there is still room.’ Luke 5: 22
The therapeutic response to chronic illness or disability is usually rest and pacing. However we live in a society where that is increasingly discouraged, if not impossible. Most people’s temptation is to change their circumstances or to find solutions quickly, rather than trust that God will provide what is needed. Instead, Mary conveys a sense of peace from the beginning. It is this sense of peace which comes from God, and trusting in God, that I think empowered Mary and can also empower us to respond to whatever we face thoughtfully and prayerfully.
Wentworth Miller says when you’re in survival mode, there isn’t space for “we” or “community.” It becomes all about “I” and “me.” He is not relating specifically to the challenges of disability, or faith communities fostering , but he shares valuable information about the challenges that may arise if you feel singular, different, and alone; if you have to spend the majority of your days in survival mode over the long term.
While the incarnation is a unique event in Christian theology, the experience of embodiment is not. I have found the image of the Word made flesh to be a powerful paradigm for seeing the experience of my minimally verbal children, both in their relationships with me and their expression of faith.
He was middle aged, had Down Syndrome, and spoke no English, but he said hello and quickly answered my introductory question about how long he had worked in that shop. I apologized for not understanding his answer and he realized that I was at a disadvantage in this conversation.
Then the pandemic hit and everything moved online. Our church hosted multiple online ways to connect: Zoom calls, online teaching, podcasts, Instagram and Facebook communities, virtual camp, book clubs, park meetups, subscription boxes and more. I could fully integrate into the life of our church community and it was wonderful.
Even if the statistics were less significant, accessibility should still be a priority considering that Jesus taught us to go out of our way to accommodate 1, rather than 99 sheep. Many churches do not make decisions which demonstrate that even one sheep matters.
When such assumptions concerning the connection between faith and chronic illness or disability do not pan out over the long term, they may lead some people with disabilities and their families to a fork in their spiritual journeys. Option one being the belief that “God is a real jerk.” Option two being the belief that “people with disabilities must be horrible people to deserve this much ‘extra punishment’.”
Ultimately, though, the way forward [...] will be navigated in relationship with people with intellectual and developmental disabilities themselves. As Whole Community makes clear, it is people with lived experience who are experts on the best way forward. "The most powerful and effective act that people without disabilities can take is to yield to the voice of people with disabilities"